Built with young people. Grounded in evidence. Made for real life.

Take Charge! grew from a simple problem: children experiencing fatigue needed something designed for them, not another generic fact sheet.

Why Take Charge! started

Children and young people with disability can experience fatigue that affects school, friendships, rehabilitation, family life and the things they want to do.

We wanted to create a resource designed around how children and young people actually learn, communicate and live.

Image from Debbie
(people working together)

Before building anything, we listened.

Young people, parents and clinicians worked together to understand what was missing, what fatigue really looks like in everyday life and what a useful resource would need to do.

Project journey graphic from the team
(with the number of co-design workshops and steering committee meetings)
Rapid review of the researchWhat was already known about fatigue in children and young people.
Interviews and focus groupsWith people with lived experience and with clinicians.
Co-design workshopsLanguage, activities and ideas, shaped with young people.
BlueprintsTurning what we heard into a design for the experience.
Testing and changesAccessibility, usability and usefulness, then another round.

Take Charge! sits where evidence, experience and clinical expertise meet.

Lived experience

What children, young people and families say fatigue is actually like, and what they wish other people understood.

Research evidence

What research tells us about fatigue, self-management and developmentally responsive digital intervention.

Clinical expertise

What clinicians know works and doesn’t work in practice.

Many people are behind Take Charge!

Photo

Name

Role

“Short quote to be supplied.”

Photo

Name

Role

“Short quote to be supplied.”

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Name

Role

“Short quote to be supplied.”

Photo

Name

Role

“Short quote to be supplied.”

Photos, names, roles and quotes to be supplied for everyone in the co-design team, listed together rather than grouped by role.

Where we are now

Take Charge! is being developed and evaluated.

We are testing accessibility, usability, acceptability and perceived usefulness, and learning how it can best fit into healthcare, home and school contexts.

Partners and supporters

This research has been funded by [funders]. It is a collaboration with [organisations].

Funder names and collaborating organisations to be supplied.